It's hard for me to believe that a whole year has passed since I did a series of posts dedicated to CHD awareness week.
This year, I haven't had much time or energy to put into doing a series of posts. But, I do want to point out that the need for CHD awareness continues, and there are many advances being made.
Check out:
http://jacobsspecialheart.blogspot.com/ for the stories of some of these amazing kids.
http://alyjeansspecialheart.com/ for some facts about CHD and some amazing advancements that have been made (including in utero intervention to lower the number of babies born with HLHS! Amazing!!)
Also, from last year, you may remember me talking about bills and legislation requiring that all newborns receive pulse ox screening before being discharged from the hospital. This site http://www.cchdscreeningmap.com/ will tell you the status of your state. I'm proud to say Florida has passed its bill, which will go into effect on 10/1/12 (not soon enough in my opinion).
Finally, I want to introduce you to a family whose blog I just stumbled upon today. Their baby is due next month with HRHS (where the right side of the heart is underdeveloped). I know they would appreciate all the prayers/positive thoughts they can get being sent their way - please think of them. http://hlhsfamily.blogspot.com/
